MovDisordV3, Main, Exploration, bibRecord, 003C98

Health‐related quality of life in Huntington's disease: A comparison of two generic instruments, SF‐36 and SIP

Identifieur interne : 003C98 ( Main/Exploration ); précédent : 003C97; suivant : 003C99

Health‐related quality of life in Huntington's disease: A comparison of two generic instruments, SF‐36 and SIP

Auteurs : Aileen K. Ho [Royaume-Uni, Australie] ; Anna O. G. Robbins [Royaume-Uni] ; Stephen J. Walters [Royaume-Uni] ; Stephen Kaptoge [Royaume-Uni] ; Barbara J. Sahakian [Royaume-Uni] ; Roger A. Barker [Royaume-Uni]

Source :

Movement Disorders [ 0885-3185 ] ; 2004-11.

RBID : ISTEX:E20D83DB3DA2E1E17F80AB2E91E033C7B306A9C2

Descripteurs français

Pascal (Inist)
- Chorée Huntington, Etude comparative, Instrument, Qualité vie, Système nerveux pathologie.

English descriptors

KwdEn :
- Activities of Daily Living (psychology), Adult, Aged, Caregivers (psychology), Comparative study, Disability Evaluation, Female, Humans, Huntington Disease (psychology), Huntington disease, Huntington's disease, Instrument, Male, Middle Aged, Nervous system diseases, Neurologic Examination, Psychometrics, Quality of Life (psychology), Quality of life, Reproducibility of Results, SF‐36, SIP, Sick Role, Sickness Impact Profile, carers, quality of life.
MESH :
- psychology : Activities of Daily Living, Caregivers, Huntington Disease, Quality of Life.
- Adult, Aged, Disability Evaluation, Female, Humans, Male, Middle Aged, Neurologic Examination, Psychometrics, Reproducibility of Results, Sick Role, Sickness Impact Profile.

Abstract

Whereas several clinical endpoints in monitoring the response to treatment in patients with Huntington's disease (HD) have been explored, there has been a paucity of research in the quality of life in such patients. The aim of this study was to validate the use of two generic health‐related quality of life instruments (the Short Form 36 health survey questionnaire [SF‐36] and the Sickness Impact Profile [SIP]) and to evaluate their psychometric properties. We found that both instruments demonstrated acceptable convergent validity and reliability for patients and carers. However, there was an advantage in using the SF‐36 because of its more robust construct validity and test–retest reliability; furthermore, motor symptoms appeared to influence some strictly nonmotor dimensions of the SIP. On a pragmatic level, the SF‐36 is shorter and quicker to administer and, therefore, easier for patients at various stages of the disease to complete. Thus, the SF‐36 would appear to be the recommended instrument of choice for patients with HD and their carers, although further work needs to be done to investigate the sensitivity of this instrument longitudinally. © 2004 Movement Disorder Society

Url:

https://api.istex.fr/document/E20D83DB3DA2E1E17F80AB2E91E033C7B306A9C2/fulltext/pdf

DOI: 10.1002/mds.20208

Affiliations:

Le document en format XML

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<front><div type="abstract" xml:lang="en">Whereas several clinical endpoints in monitoring the response to treatment in patients with Huntington's disease (HD) have been explored, there has been a paucity of research in the quality of life in such patients. The aim of this study was to validate the use of two generic health‐related quality of life instruments (the Short Form 36 health survey questionnaire [SF‐36] and the Sickness Impact Profile [SIP]) and to evaluate their psychometric properties. We found that both instruments demonstrated acceptable convergent validity and reliability for patients and carers. However, there was an advantage in using the SF‐36 because of its more robust construct validity and test–retest reliability; furthermore, motor symptoms appeared to influence some strictly nonmotor dimensions of the SIP. On a pragmatic level, the SF‐36 is shorter and quicker to administer and, therefore, easier for patients at various stages of the disease to complete. Thus, the SF‐36 would appear to be the recommended instrument of choice for patients with HD and their carers, although further work needs to be done to investigate the sensitivity of this instrument longitudinally. © 2004 Movement Disorder Society</div>
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Movement Disorders (revue)

Health‐related quality of life in Huntington's disease: A comparison of two generic instruments, SF‐36 and SIP

Health‐related quality of life in Huntington's disease: A comparison of two generic instruments, SF‐36 and SIP

Source :

Descripteurs français

English descriptors

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

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	Movement Disorders (revue)
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